
More Resources
www.apfed.org
American Partnership for Eosinophilic Disorders (APFED)
A nonprofit organization dedicated to patients and families affected by eosinophilic gastrointestinal diseases (EGIDs), including EoE.
What you’ll find:
Educational resources and webinars
Support group info
Clinical trial opportunities
Advocacy updates and research funding initiatives
www.foodallergy.org
Food Allergy Research & Education (FARE)
A leading nonprofit focused on food allergies and anaphylaxis.
What you’ll find:
Food allergy safety tips
Advocacy and policy updates
Educational toolkits for schools and families
Research news and patient resources
www.eoecare.com
EoE Care – A resource hub focused on Eosinophilic Esophagitis (EoE).
What you’ll find:
Detailed patient education about EoE
Information on treatment options
Digestive health blog posts
A symptom tracker app
www.elecare.com
EleCare – A brand of amino acid-based, hypoallergenic formulas by Abbott Nutrition.
What you’ll find:
Product information for infants, toddlers, and childre
How EleCare can be used in EGIDs and food allergies
Sample request and insurance help tools
www.neocate.com
Neocate – A brand of amino acid-based, hypoallergenic nutrition formulas by Nutricia.
What you’ll find:
Product lineup for various ages and conditions
Guidance for using elemental diets
Recipes and transition tips
Insurance coverage support
www.feedingmatters.org
Feeding Matters – A nonprofit dedicated to pediatric feeding disorders (PFDs).
What you’ll find:
Educational tools for families and provider
Parent stories and advocacy opportunities
Info about feeding therapies
Access to professional networks
www.curedfoundation.org
CURED Foundation – A nonprofit focused on raising funds for research and increasing awareness of EoE and EGIDs.
What you’ll find:
Patient stories, fundraising events, and medical conference support
https://www.rarediseasesnetwork.org/cms/cegir
CEGIR – Consortium of Eosinophilic Gastrointestinal Disease Researchers – An NIH-funded research network collaborating across multiple institutions (e.g., Cincinnati Children’s, CHOP, Colorado)
What you’ll find:
Information on clinical trials and investigator-led studies